Lisa's thoughts about Love, Life, Lyme, and Liver disease

Timmy with his Dad, brother Joe and God son Dalton Timmy and his Mother and Timmy with Joe Joe's youngest brother Timmy is the most amazing, funny, thoughtful, music loving dancer, and compassionate person.  Anyone fortunate enough to meet Timmy, walks away with a smile on their face and a realization that the entire world should get to spend a day with Timmy.  It could be life altering to many.  The compassion, the innocence, the pureness, no hate, no fear, no judgement - just pure and loving. Timothy was born on Christmas Eve 1957 with Down Syndrome. For the first eight years of his life he fought respiratory complications eight times and his parents could never be sure that he would live.  It was never an option to place Timmy in a state institution (as advised by the medical community); instead he was raised at home in a loving family with his five older siblings.   Timmy's family lived in NYC and when Timmy was 4 years old he atten...

Cold weather doesn't kill the tick that carries Lyme. But this beautiful snow would kill a delicious Lime.   Save the delicious lime.  I wish this beautiful snow storm and mother nature would realize the havoc that the tick carries and make it go away forever.  Bye Bye.  Can yo u hear me sla m the door shut! As for those cute limes- I wish they could s urvive frost.  M y cosmopolitan martini needs a garnish and now I am in the mood for all foods that use limes. Heather and I love a good snow storm.  The bonus with this storm is that it is during the weekend and I don't have to go to work.  However, because of her neuropathy, extreme cold is AWFUL for Heather's pain.  My little snow bunny will bundle up and enjoy a few quick walks with her puppy.   Beside the beauty of  newly fallen snow and the quietness of no cars driving, I just feel like a kid romping around in the snow making snow angels, throwing snow ball...

This lyme stuff is beyond frustrating and sad for me.  I can't even fathom how awful it is for my sweet Heather.  She is sick and tired of being sick and tired.   She is determined to not let this disease restrict her, define her, or alter her life style.  As her Mom, I am supposed to be able to fix this, right?  I try to stay positive, but sadly Heather and everyone who knows me can see my concern.  Lyme disease sucks.  There, I said it.  Sometimes you just have to let it out. I hate that damn tick.   Hate is such an awful word, so I will just say that the I really, totally, without a doubt, 100%, despise/detest ticks. Heather's restaurant is closed for a few weeks, so she is home for now.  Just seeing her calms me down a bit.  However, it is soooooooooooooo hard to see her daily struggle with fatigue and nerve pain.  Her nerve pain is getting worse, but that was somewhat expected with the cold weather....

This blog will share an awful experience that we had with a judgmental pharmacist soon after Heather's Lyme diagnosis in December 2014.   Before I begin, I must admit that the title for this blog could have been "Don't mess with my daughter" or "You said WHAT about my daughter".  When Heather was released from the hospital, her pain management was a combination of nerve medication and, temporarily , a low dose of Morphine.  The morphine was prescribed to temporarily assist with her pain management. On the way home from the hospital we stopped at several pharmacies to get the prescriptions filled.  There was a complication with the prescribed morphine dosage.  So we headed back to the hospital in hopes that their pharmacy could fill the prescription.  We returned to the hospital pharmacy and the pharmacist informed Heather that they did not have the 7.5 mg dosage, only the 15 mg.  Heather mentioned when she was in th...