Lisa's thoughts about Love, Life, Lyme, and Liver disease

Delivering apples to neighbors on  Thanksgiving - their idea! This weekend I was writing a blog about Heather and her childhood best f riend Maggie . Maggie and Heather lived two hou ses apart from each other and were inseparable until they attended different high schools a nd colle ges .   Maggie eventually became a West coast girl and Heather was an East coast gi rl. I was reminiscing abou t all their fun in elementary sch ool and middle school and, b e fore I posted it, a package arrive d in the mail fr om Maggie.  It cam e the day after Heather was so sick with nerve pain and fatigue.  It may be 20 years since they were be st f riends, but that bond still exi sts.   Maggie wrote a caring and funny note and in clude d a n aroma therapy s tuffed animal that wraps a round your nec k.   Her note was hysterical, it said "I know you a lready have a dog, but t his one ca n be microwaved."  Very Maggie, very funny. I can't d...

Can you imagine that?  When in the world do I have nothing to say. We are still in a holding pattern.  Waiting on more blood work, more tests, adjusting meds, etc. Last week, they started Heather on another supplement and her body had a bad allergic reaction. So in addition to everything else, she is now covered in hives and feels even more miserable. I think this picture kinda sums up the last month.  Heather sleeps a lot - which is a good thing for her mono.  The picture also shows my shadow hovering over her while I snap this picture of Pearl and Heather sleeping.  I wasn't one of those hovering helicopter parents - but now that she is living at home, I do find myself watching her while she sleeps.  It is hard to watch the nerves twitching, but when she is in a deep sleep I know she is getting some rest, she is unaware of her pain, and those cute dimples - well, they just make me smile.   When she has the energy she has acquired a new...

Last time leaving the apartment Sunday March 20, 2016 Start spreading the news ... Heather's leaving today.... In May 2015 Heather made the correct decision to spend the summer at the beach and "heal."  However, her fully furnished one bedroom apartment lease didn't expire until April 1st 2016.  She didn't want to break the lease and lose the security deposit.  Also, Heather wasn't sure if she was going to return to NY.  Luckily, her friend Nate decided to rent the fully furnished apartment and Heather moved to the beach with her summer clothes.  My beach bum. Nate has been such a good friend and to have him in her apartment allowed us to take control of one thing and check it off the list as done.  When Heather realized that she would not be returning to NYC in the fall, Nate sent down her fall/winter clothes. It is now the end of March 2016 and Heather and I are in Astoria packing up her items and professional movers will bring her thin...

Pearl enjoying the fire Thursday 3/31/16 - I wa nt to give a quick update about Heather .  For the last week, she has been having high fevers and unable to keep food down.  She went to the ER for blood work, images,  and IV fluids.  Seven hours later, she was sent home and the ER doctor was quite f rankly stumped by all that is goin g on.  Sadly the more tests they run, the more they find.  (4 /2/16 u pdate - got a phone call from ER and Heather has mono.  Heavy sigh .)   It explains the recent fever , f luid in lungs, and more fat igue. The ER d octor said that Heather is like a Dr. House patient.  He wants to follow her case to see how it pans out.  I love th e interest - but it saddens me that the main stream medical community doesn't under stand chronic Lyme disease.  It makes me sick to know that the CDC doesn't recognize chronic l yme disease and sets the gui delines that doctors must fol low .  I will save ...