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Showing posts from July, 2016

Mean girls........

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You know exactly the kind of girls I’m talking about—the ones who think they’re cooler, prettier, or somehow better than everyone else. The ones who say mean things about you, to you, or behind your back. Bottom line: they’re mean. And honestly, who would ever want to be friends with them? Let me take you back to what happened a few days ago. Heather was feeling good, put on a cute sundress, and decided to run some errands. Keep in mind, her weight is still low and she’s lost so much muscle mass. She gets judged constantly—too thin, too fragile, and when her stomach swells, strangers ask when she’s due. (Spoiler: she’s not pregnant. She’s sick.) Anyway, as she was carrying two grocery bags—one in each hand—she noticed a mom and her teenage daughter staring at her. Staring, pointing, and laughing. You can already feel where this story is going. As they walked past Heather, the mom said loudly to her daughter, “Well, at least she can carry her food,” and then they cackled—literally cack...

Succ ......... suck

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I got your attention right?   Enough of these silly blog titles. Don't you love the planter for my succulents?  The ol' tree stump looks pretty darn fancy now and my succulents are happy.   AND........Lyme disease sucks. Since I have your attention, let's move on. How do I begin - nothing bad, just some of the many thoughts that are spinning around in my head. First, Heather is healing from her surgery and hospital stay. I thought the Lyme doctor would be the primary doctor and Lyme would be the focus, but we had to take a step back and look into the gallbladder and liver issues. We are happy to report that her immune system is calming down and the liver enzymes are in the normal range again.  Heather has an appetite again, thanks to the removal of her gallbladder, and she is back in the kitchen concocting healthy and yummy low salt meals.  We met with the Lyme doctor soon to discuss the last three months and circle back to her Chroni...

Let's talk about the book

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No silly, I'm not writing a book about Lyme disease .... I'm talking about my lime colored three ring binder that has Heather's medical records for the past 18 months. For those of you new to this journey, this is MY best guess about the last 18 months.  First, when Heather was 12 years old we found out she had a slightly compromised immune system.  Then, in the fall of 2014 Heather starting getting sick with the flu, tingling in hands and feet, and numerous kidney and bladder infections.  Her immune system was probably getting annoyed.  Then you add in the Lyme disease diagnosis and aggressive antibiotic treatment in December 2014 and her body was like WHOAAAA - what the F is happening.  Her body continued its silent attack on her organs, then to add insult to injury, throw in a surgery in 2016 and SCREEEECCHHHHHHH.  The brakes are slamming and Heather's body is angry. Remember, we are in Lisa's world right now. I'm not a medical doctor, but I...