Last night Heather had one of her awful nerve pain
episodes. It breaks my heart to see her
curled up in pain, crying, and basically inconsolable. I feel so helpless. Heather is tough and has a pretty high pain
threshold. It's just not right that my
vibrant and free-spirited 33 year old is in so much pain that she has problems walking and going
up the stairs. I can't even imagine what
is going through her head as she deals with this chronic pain. She is doing
everything that the medical team advices from meds, to diet, to exercise, to rest,
to Epsom salt baths, lemon water........and so much more.
I have no idea how she feels - I can only guess based on hearing
her cry and looking into her eyes. I have never experienced chronic nerve
pain, but I know it must be AWFUL. It is a pain so severe that she says it
feels like someone is sticking a hot metal rod up her feet through her
calves.
We met with the Lyme Doctor this week and they are adjusting
her meds, adding supplements, and basically trying to get her pain relief. Sleep is so important when someone is ill, so
they are working on that too. She hasn't
started treatment yet for her Lyme because they have to deal with autoimmune
issues that are affecting her tissues and organs.
The waiting game to have the procedures performed, get the
results back, then schedule the next procedure is quite frustrating and
scary. Right now it appears that she
will be having surgery to remove her gallbladder. As far as surgeries go, this one is pretty
standard - but surgery is still surgery.
I just try to look back and remember what a fighter Heather was as an infant, during her two surgeries, and
realize that she WILL beat this.
Lyme disease sucks.
It doesn't help that her immune system is so messed up. Heavy heavy sigh.
I love you Heather. I
am in constant awe of your strength and positive attitude. It's OK to be scared, it's OK to get
frustrated, it's OK to cry.
I am always here for you.
Forever. Promise.
Thanks Diary - it helped to vent.
xo
Lisa
