Heather had a normal childhood. But as I type this I don't think it was normal for her to have two surgeries before she was 2. I don't think it was normal that she had her Screen Actor's Guild card at the age of 15 (yep, once a stage Mother always a stage Mother). On a side note, Heather can attest that I wasn't a normal stage Mother. I was simply the chauffeur to/from auditions, jobs, lessons. Driving 100 miles a days were sometimes the norm for us, but I digress.
So, bottom line, we are very pleased with Heather's health stabilization. She will not see the Liver specialist for THREE WHOLE months. Normally she was going every month. Needless to say, we are ecstatic that the appointments are further apart. She will continue to have her blood work done every month.
So does this mean that Heather's medical situation is now "normal"? Well, I personally don't think that it is normal for Heather to still have severe neuropathy pain. It isn't normal to sometimes have brain fog. It isn't normal to be so fatigued after sleeping 12 hours. Have I mentioned lately that ticks suck? It really isn't normal to be seen every three months by a liver team. It isn't normal to have MRIs done every six months.
What is normal about Heather's current health is that her blood tests are sooooooo much better than a few years ago and a lot better than 6 months ago. We will take this new normal.
I do know that my "norm" always includes being by Heather's side and helping her navigate these curve balls that life has been throwing at her lately.
I love you Heather. This latest news is wonderful. You have worked hard to stay focused, stay positive and stay strong. Sure there have been some ups and downs, but that is life. It's a good thing that your determination and positive attitude has, and will always be, your "normal" approach to life. Onward and upward Heather. These baby steps are now normal steps and I like that.
xo
Lisa
